Showing posts with label human rights. Show all posts
Showing posts with label human rights. Show all posts

Friday, 7 June 2019

The Greggs' Effect


Veganism, classism and disableism




I’m pretty sure everybody in the UK and a fair few people outside it will have learned that Greggs – a low cost bakery chain – released a vegan sausage roll in early 2019. It caused much consternation amongst some quarters, most noticeably those who look up to the conservative “political pundit” and former game-show-host Piers Morgan. Piers’ over-the-top and toddler likerejection of the vegan sausage roll was a rallying cry for those who hate veganism generally, people who simply couldn’t understand why vegans might want a budget bakery item. Sadly this criticism and disbelief wasn’t just limited to those of a more socially conservative bent. There was also a surprising amount of wailing from people within the vegan community. It’s not healthy enough? Why would you want a meat replacement? If you’re vegan why are you buying from Gregg’s at all.

In some ways this second wave of criticism was actually more frustrating. After all anybody who doesn’t belong to the cis-male, white, straight, “British” group is pretty used to at some point coming in the firing line of Morgan and his brethren. That’s sadly the way of the world: stray from the path of what “they” have defined as “normal” and you will be criticised (or downright discriminated against). But when you are part of a counter-culture or alternative lifestyle group, you generally expect a certain amount of solidarity from within, even accounting for differing opinions and personalities. So a wave of criticism from your own “side” especially when you are also being attacked from other quarters can really knock the wind out of your sails.

photo from wikimedia image shows the store front of a Greggs Bakery. It has a blue and white sign with an orange square logo)

So now it’s almost 6 months later, and the financial news is reporting that Greggs is reporting soaring profits and steady gains in the stock market almost entirely attributed to increased sales of and because of the vegan sausage roll. With that success, Greggs is talking about expanding their vegan range, which for me is only a good thing. But with that comes controversy. Remember that criticism from other vegans I talked about only two paragraphs ago? Right that becomes an issue. You see there is a perception from non-vegans that veganism should be “healthy”, and this is a perception that is held up in some quarters of the vegan community. Vegan food should be “healthy” natural, full of vegetables, whole grains and other nutritionally superior goodies. Additionally we shouldn’t want to be mimicking meat because this is somehow ethically unsound and requires more of those pesky “unnatural” processed foods. These are the sorts of people making suggestions for new Greggs products that include lots of different vegetables and interesting grains, less fats and less delicious golden pastry.

But here’s the thing – nobody thinks that Greggs is or ever has been a bastion of healthy lifestyle. Nobody, vegan or otherwise, goes to Greggs expecting a nutritionally balanced, “healthy”, whole foods, natural lunch. You go to Greggs because you are hungry and it’s there and sometimes a baked good is exactly what you fancy. And that’s entirely ok.
Initially this debate may look fairly inconsequential and not something worth spending much time on. If one group doesn’t like fake meat and another does what’s the problem? The problem is that this actually becomes an argument about disablism, classism and food snobbery within veganism and other lifestyle choices.

So let me tell you about an experience I had just today. For context, I have been to Greggs only once since the introduction of the vegan sausage roll and I wasn’t a frequent visitor before that. Recently my CFS/ME has been worse than usual and I’ve been having a higher number of high fatigue days. I’m finding it more difficult to balance out exertion and rest as needed. So on this particular Thursday I had been to get my hair done. Due to the timing of the appointment, I hadn’t had a proper lunch though I had had a snack. My mid afternoon I was very hungry and my bloodsugar was low. I was also starting to struggle with fatigue. Due to that difficulty I wasn’t thinking straight and instead of getting a taxi from the place literally next door to my hairdresser’s I decided to get a bus half way home and walk the rest. I was soon really exceptionally fatigued and struggling to walk much. I was shaking and walking with slower and slower steps. I was also very hungry. All I wanted to do was sleep and eat, preferably at the same time. I hadn’t budgeted for lunch out, after all I’d just spent money on getting my hair done and now had to be conservative with spending. Luckily for me my route took me past a small shopping centre. So now I had options. Supermarket, discount food store, chain cafe and Greggs. In reality due to my fatigue and my budget I didn’t actually have that many options at all. I did not have the energy to walk around a supermarket looking for individual easy to eat vegan items. That would probably end up costing around £5 too which is more than I wanted. Likewise with the discount food store – it may be discounted but what they have available is varied and it would take a lot of energy to search out and check labels. The cafe would be more expensive and I’d probably only be able to get a cookie. Greggs and their vegan sausage roll was looking like some sort of greasy baked good oasis.
I got my sausage roll (the very last one) and ate it in a very few bites leaning against the wall and in short order the signs of hypoglycemia subsided and I and a fraction more energy. I was only £1 down to boot. It only took a short rest against the wall (because all the benches were out in the rain) and I judged myself able to make it home on foot. Thank goodness it was downhill from there. Even then the last 100m were painfully slow and on getting home I still had to have a protein smoothie banana and then fall into a solid sleep for two hours.

photo author's own. image shows an agender person wearing glasses and a black hoodie. They have green and purple curly hair and are leaning against a wall holding a sausage roll in a Greggs paper bag to their mouth

But what’s the point of this not so thrilling look into the average day of somebody with ME? Well here goes. That slightly greasy, warm, flaky pastry encases lump of processed fake meat was exactly what I needed right then. Regardless of what I actually like the taste of what I needed was something simple, that I could eat right then and there with one hand, that had protein fat and carbs, that required little thinking, no checking of ingredients and of course was cheap.

Don’t get me wrong I love good food. I love home-made-from-scratch food. I love piles of vegetables and interesting ingredients. I am the sort of person who makes asparagus and cucumber beurre blanc with pasta as “an easy simple meal”. I can frequently be found shoving handfuls of fruit into my face. I love “healthy” “natural” food. But what I also need is food I can eat and food I can afford. 
An awful lot of vegan food that goes down the healthy lifestyle route just doesn’t tick those boxes. When I am that exhausted or have brain fog issues I can’t be checking ingredients to make sure something non-vegan or something that sets of my IBS isn’t in there – and yes many common health foods are super incompatible with IBS, which is a common component of CFS/ME and EDS. I don’t have energy to stand dithering at a counter figuring out which superfood salad really hits the spot. I don’t have the energy to go around a supermarket looking for different items. Sometimes it’s because the things I need in order to be healthy are things over looked in so-called healthy food (and I promise not to derail into an entire other article about notions of “healthy” food) and that is that carbohydrates, some fats and protein, the big easy things, are really important to a person’s diet and are often especially important to somebody with a chronic health condition who just needs fuel. Vitamin B12 is essential to body function and something I need to be mindful of on a vegan diet. But it doesn’t matter how much B12 I get if I don’t get the required number of calories, grams of carbohydrate and protein into my body to just keep me upright.

On top of that I don’t have a lot of money. If I want to do things like get my hair dyed at a salon I budget for it carefully (including taxis when I remember them) and that means I can’t be spending a fortune on eating out every time I get hungry (and no I can’t carry packed lunches everywhere, that gets heavy and energy sapping fast).

Sometimes I just want easy tasty food that I don’t have to think too hard about and that I can afford.

Sometimes I just need easy tasty food that I don’t have to think too hard about and that I can afford.

I am not going to Greggs because I want nutritionally balanced fancy food. I am going there because it fills a particular niche in daytime food whether you are vegan or not. So for everybody suggesting that Greggs start doing a butternut squash and spinach pastie, whilst yes that does sound lovely, will you kindly shut up. Go and get that somewhere else. You can I assure you find that somewhere else. What I want is a vegan corned beef slice. Or a vegan cheese and onion roll (this is a flagrant lie, I’ve never liked cheese and onion rolls and onion triggers my IBS). Or a vegan steak bake. Now there’s choice. Things so simple the ingredients are in their name. Things so simple you can get it and a drink and have change out of a fiver.

You may be thinking “well if you are disabled and have such difficulty finding food then maybe you shouldn’t be vegan?” or even “Well if you haven’t got much money then you shouldn’t be fussy about your food?”.
I’m just going to give you a few moments to really think about what you are saying there.


Let me tell you how those things sound to me: when you say somebody who is disabled, chronically ill or poor shouldn’t be vegan you are telling me that somebody who is disabled, chronically ill or poor shouldn’t be allowed to have their own ethics, morals or beliefs. I don’t care if you agree with my beliefs or not, but I am very, very concerned that you would think that a person’s right to their own thoughts, their own beliefs and ethics should be governed by their physical ability or health and their financial status. Every single person in this country is by law guaranteed the right to have their own ethics and beliefs and to act on them as long as they don’t cause harm to anybody else. If my beliefs are that I don’t eat animal products then I should have the right to do so even if I am ill, disabled or poor. Because on top of that right to hold ethics there is also the human right that I or anybody else should not be discriminated against due to disability or socioeconomic status. If non-disabled people can choose to eat an animal free diet then why do you believe that somebody who is disabled does not have that right?

If you have the energy to get “higher quality” food or to look for something more nutritionally complete or with fresher ingredients. Great, you do that. And on my good days I’ll be right there with you enjoying some delicious delicious greens. But on my bad days if that’s all that’s on offer I won’t be by your side. I’ll be on the floor crying because my legs don’t move any more.

To insist that all vegan food should be healthy, natural and conform to a certain narrow view of what vegan food should look like is classist and disableist. To level that criticism at other vegans, to tell them they are “doing it wrong” or aren’t “proper vegans” or should be in some way ashamed for wanting a mass produced cheap baked good is classist and disableist and you need to stop. You eat what you want, and let me eat my dream vegan corned beef slice before I pass out.

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Wednesday, 13 February 2019

Me Vs My Disability


Many people who are disabled have to walk a fine line controlling other people’s perception of them: the line between looking vulnerable and not yourself and appearing “not disabled enough”.

The way our society treats disable people erases their identity and turns individuals into a single homogeneous being of “The Disabled”. We are stripped of what makes us us and instead represented by walking sticks blue badges wheelchair pictographs and infernal aluminium and grey plastic.

“You don’t look disabled!” and “But you don’t look sick!” are stock phrases that every disabled person will be tired of hearing. The phrase is usually offered one of two ways: disbelief and judgement or an attempt at a compliment.
When offered as a compliment it is to say “you don’t look how I think a disabled person looks” or “you don’t look pathetic or weak”. This is part of erasing our identity and assuming that all disabled and chronically ill people fit into a single mould. It also assumes that the goal and the ideal is for the person to not be disabled and so be successfully looking “not disabled” we are achieving success. It also ignores the fact that regardless of how we look we are still disabled, we have gone to great effort to look our best but that doesn’t mean we negate our disability.
When the phrases are said with animosity or judgement they fuel discrimination. The implication is usually that in claiming disability status, and especially in making use of any support or assistance, we are lying, faking or acting fraudulently. Again this comes from a place of not conforming to views of what a disabled person should look like or how they should act. It also ignores the fact that you are often only seeing disabled or chronically ill people on good days, not on the bad days or at times when their disability limits interaction: if a disabled person can’t every make it into a pub with poor accessibility some people may draw the conclusion that disabled people don’t go to the pub. That is to say, enjoying a pint with their friends doesn’t fit the picture of disability which has been created in their minds.
photograph showing a person from the waist up wearing dungarees and a black t-shirt, they have grey lipstick, glasses and green hair. They have tube bandages on both elbows. credit Chiara MacCall


The impact of this can be devastating from verbal and physical discrimination and abuse, an unwillingness to improve accessibility to place out of a belief that disabled people won’t use certain facilities, to privation when benefits aren’t awarded or long term health issues and even fatality if medical treatment is denied.
One of the often unspoken casualties of this attack on how disabled people should look and behave is the mental health and well-being of a disabled person. When you are reduced only to one aspect of your life, and that aspect is often difficult and unpleasant or comes with negative associations, it can wear away at a person’s sense of self, their confidence and self worth. Additionally being constantly questioned and doubted as to the validity of their experience can cause guilt, confusion, stress and paranoia. The mental health cost of the general public not really seeing disabled people as people is massive.
Photograph of a person from the waist down. They are seated and are wearing blue short dungarees over a black t-shirt. They have black skeleton print knee socks on, camo-print K-Tape on their left knee, tube grips on their elbows and support gloves on. Their hands resting on a walking stick. credit Chiara MacCall
However there is a balance to be struck. If we see only the individual and erase their disability, we may create more inequality by not addressing the access and care needs of disabled people. If we see only the disability we erase their identity along with any other characteristics and difficulties they may face (because a disabled person may also be a black person, a Muslim, gay, trans, poor or other minority characteristics).

I have writtenpreviously about being seen as a vulnerable adult. This continues to be an issue especially following a recent burglary that has left me very aware that I am to many people who see me a vulnerable person. To those who only see the disability I am an easy target (if their minds lead to nefarious activity any way). That’s a very difficult position to find yourself in. I don’t want to be viewed as nothing more than an equation that disabled = vulnerable yet I must face the fact that not only are there people who view me this way but that they aren’t entirely incorrect.
What could I do really if there was an intruder in my house, especially on a bad day where I was struggling with fatigue or pain. Could I fight back if attacked? Could I defend myself and my house. The answer is, probably no. Despite the fact that I have, prior to my disability, years of martial arts training is inconsequential. It doesn’t matter that for somebody with my health conditions I am relatively strong. The majority of time I am a vulnerable adult and I know that anybody seeing me in the street or, gods forbid watching me exit and enter my house with my walking stick, could conclude that I am an easy target.
Understandably this is a very difficult concept to deal with. Nobody likes to think of themselves as a target or feel unsafe in their own home. But worse than that it strips me of my identity and personality. It reduces me to that concept of disabled and nothing more.
photograph that is blurred showing motion. A person is walking away from the camera wearing a backpack and using their walking stick. Credit Chiara MacCall

But I am more than that. And I want non-disabled people to know that. I want non-disabled people to start to look beyond the sticks and chairs and hearing aids and to see real people and to understand that if somebody saying they are disabled even if you can’t see any obvious indicators, even if they don’t fit the traditional narrative of what disability looks like, that maybe they are disabled and maybe there is more to them than that disability. Being disabled does not erase my gender or my sexuality. It does not erase that I like heavy and eclectic music. It does not erase the fact that I love art and books and food. It doesn’t erase that I enjoy being active and singing and horses. It doesn’t erase my political opinions or activism.

photograph showing an arm stretching up toward the sky with a crane behind it. The arm is hyperextended and the elbow is at an unusal angle and covered by a tube bandage. The fingers are splayed wide. Credit Chiara MacCall

More than that those many things and more that make up who I am do not in any way make me less disabled, cure my disability, make me a liar, make me a faker, erase my disability or my experience as a disabled person.

That’s what the photographs illustrating this article are all about. They are a collaboration with documentary photographer Chiara MacCall who uses her lens to show who people really are and who has a great talent for showing what is beneath the surface of her subjects. I spent a day in London with Chiara being disabled and being me. We ate good food, talked politics and social justice, looked at art both in galleries and on the street and talked about what it was that made us who we are. I was not “born disabled”. I gained my disability in my late 20s. It has taken a long time for me to accept that this is a part of who I am, that it can be a part of who I am without erasing my personality, identity and the sum of the experiences I had had up until that point. Just as taking a dance class when I was 7 shaped who I am today, so did becoming disabled when I was 27.

My self identity does not invalidate my disability and my disability does not invalidate me.

Photograph showing a person wearing dungarees a black t-shirt, black skeleton print socks with various joint supports and a walking stick stood in front of a large piece of street art showing an orange skinned femme figure covered in flowers. cred Chiara MacCall


Sunday, 13 January 2019

Sunday Short: Saying no to hatred

Today's Sunday short is brought to you from a Facebook post originally shared on the 10th January. 


Screen shot of a Twitter Post from user Casey Forbes (@caseyf) that reads: I deleted that Build the W*ll hat that was posted to @Ravelry. It goes in the bin along with the confederate flag patterns. I'm especially thankful for the latinx ravelers who toot the time to write me about it and I'm sorry that you had to look at that shit. The tweet is dated Jan 9 2018 from 1L35PM


This is how you do it if you are a website owner/manager/moderator or any organisation really.
You don't just have T&C that say no racist content. You stand by your policies. When somebody violates those policies, you don't look for a loophole, you don't look for an excuse, you don't play devils advocate.
You stand by your policies and principals and you take action.

In this case that means deleting a knitting pattern which supports a racist and xenophobic policy and person.

Remember this is nothing to do with free speech. This is a website owner who has said "I will not tolerate intolerance on this website". If that knitter wants to knit and wear their hat in their own time off of Ravelry, they can. But other people have every right to call them out on it. And a content manager has every right to say "you have broken our terms and conditions and we well not allow that.".

I haven't knit anything or even been on Ravelry in ages. But this is why they are awesome. Even if you don't do any sort of fibre art, there's a lot we can learn from Ravelry.

Monday, 31 December 2018

Open letter to the Trades Club about accessibility


An open letter to The Trades Club in Hebden Bridge following my visit there. This was sent on 17th December. I waited for a response from them and include any response from them below. There is further comment and thoughts at the bottom of the post. 


To you all,

Apologies for contacting via facebook, I was unable to find a contact email address.

I made my first visit to The Trades Club on Friday 14th of December. Knowing the reputation of the place as inclusive and socially liberal I was looking forward to my visit. Sadly that excitement was soon quashed when I realised there was one group of people you are not inclusive for and discriminate against: disabled people. I am fortunate that I can manage stairs, but due to my disability it is not without pain and difficulty. There are many others who simply wouldn’t have made it passed the front door. Understandably considering there is no step free access, no accommodations have been made for wheelchair access such as wide aisles for getting through the main hall or adequate seating options in the bar. However these accommodations don’t just benefit wheelchair uses but help people with other disabilities including mobility issues.

You have no accessibility statement on your website. No accessible toilet (which isn’t just a matter of allowing a wheelchair in). No notices about hearing loops, lighting, seating or signing.
There are no accommodations what so ever for disabled people. As a minority group we have been forgotten or dismissed as not worth a thought or the time and money. Without even an accessibility statement on your website there isn’t even an indication that accessibility for disabled people has been considered at all.

What particularly makes this a sore issue, apart from people not even being able to get into the venue, are your multiple statements and posters stating that you are an inclusive venue. You promote acceptance and outlaw discrimination based on race, gender, sexuality and ethnicity. This is wonderful. I am included in more than one of those minority groups and appreciate that sentiment. But it is a bitter pill to swallow when you continue to discriminate against disabled people and I was lucky to get into the venue at all.

I understand the building is difficult. I understand you are not a big corporation with plenty of financial backing. But I don’t believe that is an excuse. How you choose to spend your budget, what you choose to say, what modifications to the building you do and don’t make are choices. I don’t expect every business and building to be a flagship of accessibility, but I do expect that groups which espouse inclusivity, acceptance and equality to make choices that do not discriminate against disabled people.
I am disappointed.
I am let down.
I am unlikely to visit again unless changes are made.

As is my standard practice I will be posting this as an open letter on my blog Axes n Yarn in one week’s time. I will include any reply I have received from you. I do this because disableism is an issue that needs to talked about and because disabled people as a minority group need their voices to be heard.

Though this is a personal email based on personal experience I should also disclose that I work freelance as an accessibility consultant and advisor via my website www.Accesscheck.net

Yours sincerely.

Robin Tynan

Their response on facebook on the 17th of December:

Hi Robin - thanks for your email. I can assure you, making the Trades Club accessable for all is at the top of our priorities. Will elaborate on email, of course. Best wishes Mal Campbell [email address redacted]

I gave them my email address so they could contact me there. I then received the following email on December 18th

Thanks for forwarding your email address. The Trades Club secretary, Michael Coneys, will be back with a response shortly.

Final Thoughts

As of writing this blog on 31/01/2018 I have had not further contact from The Trades Club. My original letter said I would publish this post a week after sending, but due to various factors I've left it until now - roughly two weeks. I appreciate that during that period it has been Christmas and the associated public holidays. However, I should note that The Trades Club has been open during this period.

I think my concerns and feelings on the subject are clear from the letter I sent to them. I am of course not pleased with their lack of response. It does not leave me feeling assured that accessibility is a top priority. It is difficult to believe that accessibility and ending discrimination toward disabled people is a priority when a business has no mention of accessibility or disability on their website or any of their public information. It is difficult to accept that accessibility is a priority when a business has been open for over 35 years and no modifications or adaptations have been made, save for a single line of small print text stating that they are not accessible on their website.

I am of course disappointed at the lack of response from the Trades Club. Though it has many qualities to recommend it, I am somewhat soured by this experience and even if accessibility weren't an issue (there are some days when I wouldn't make it past their front door) I would be hesitant to support them in the future. I honestly feel that any venue or business that claims to be inclusive and welcoming of all minorities and yet fails to address the barriers which are excluding a group of people is disingenuous and needs to examine their ethics closely.

Should I receive any further correspondence from The Trades Club I will post an update.

UPDATE 08/01/19

I received the following email on 07/01/19. I haven't replied as I am not sure if a reply is necessary at this point. I may follow up their offer to telephone to talk over various points but will be doing so in a professional capacity as Access:Check. I am accepting of their apology and acknowledgement of problems. I continue to dislike, from any group, passing blame on to landlords. That is not because I believe the landlords are without fault, but because I believe there is a shared responsibility between tenants and landlords to address structural accessibility concerns, especially in long term leases.

Hi, Robin,
Mal passed on your comments regarding the Trades Club.
Firstly, could I apologise for the delay in responding and secondly,
for the Clubs shortcomings.We fully acknowledge your critical
comments.
While major structural changes are in the hands of our landlord ,(plans have been drawn up to link the lower and upper floor ),
there can be no excuse on our behalf for the lack of information
on the website . Clearly,we will set about trying to implement many of your suggestions.
In the meantime if you wish to discuss this in more detail, please
feel free to contact me. [redacted]
Kind Regards ,
Michael Coneys, Secretary ,The Trades Club


Sunday, 16 December 2018

Sunday Short - Can't we have pretty things?

So I need a new shower stool right. But I have this thing where I loathe things commonly sold as "shower stools" in the UK. They are so often aluminium and white or grey plastic. At first I thought this was some sort of internalised disableism, and in part it may be, but it's actually mostly something else.

The grey plastic and aluminium is very institutional, very medicalised. It is reminiscent of, in-fact often the same items as, those used in hospitals.

And I hate being pathologised like that. I hate being reduced to a disability and being classified as a medical problem.

Just because I have a chronic illness, just because I am disabled does not mean that I shouldn't be allowed to have personal preferences or style. 

photograph showing shower stools and adaptive devices made of aluminium and grey and white plastic.

This is just a part of the wider problem of how disabled people are treated in the UK. It is a symptom of “othering” and of creating an “us” and “them”. Disabled people are the “them” of society, segregated and kept in place, identified and marked out by their aluminium and grey. These hospital style contraptions are the modern black triangle patches*.

Only when we start recognising that disabled people are, shockingly I know, people who are individuals with their own lives and interests that have nothing to do with their health will we start to break down the barriers between “us” and “them”.

And in the mean time I have to deal with the fact that something as basic as a wooden shower stool is seen as a luxury item costing £50 and up: my choices are to buy something cheap and not fit for purpose or a sturdy but ugly and medical styled aluminium stool.


*Disabled people were designated with black triangle patches in Nazi Germany as part of the asocial group. However some modern disability rights groups are reclaiming the symbol for their campaigns.

Thursday, 1 November 2018

Let's talk about death

It being Halloween, All Hallows Eve, Samhain, Dia de los Muertos and so on, this seems like a good time to have a conversation about death and dying.

No, not the horrors of death, undead corpses walking around and spooky ghosts, but the actual realities of death and dying. For many people of different faiths and cultures, Halloween is more than an opportunity for costumes and scary films, it is a time where we consider grief and loss. There are often remembrances for the dead or the opportunity to accept loss and grieving and to move on. This ritual of being at peace with death and loss doesn't have to stop at others, it can extend to yourself too. Often this is metaphorical - saying goodbye to difficult circumstances or grieving a loss of self due to illness.
But maybe it can be more practical too. One of the many ways we can be more at peace with the concept of death in general and our own deaths in particular is toactually take time to think about what happens at the time. This doesn't just mean spiritual beliefs about the afterlife or what happens to a persons soul or spirit but can and should include practical considerations about how you physically want your death handled.

Ideally by considering these things and being open with loved ones about your own wishes you can encourage others to open up and talk about their wishes. While the thought of a loved one dying might be filled with sadness and fear, knowing what their beliefs are and what their wishes are can help to bring us to terms with their death (long) before the fateful day. If the only benefit is not having to worry about guessing at their wishes and making the practical aspect easier, that's still a weight off the shoulders of a grieving person.

In the therapy practice DBT this would probably be counted as the "coping ahead" skill in which a person visualises and works through a potentially distressing event in advance in order to lessen the impact of future feelings and to understand and cope with things which may be difficult.

But starting those conversations can be difficult. So let me go first.

I don't know what I believe about the afterlife. I am open to the concept of spiritual afterlives such as some non-Christian version of heaven. I don't really believe in reincarnation and I don't really believe in ghosts and the spirits of the dead haunting the living plane. I also don't believe that what you do to the body of the deceased impacts on any potential afterlife.

That doesn't mean I don't care what happens to my body. I actually do. I live my life in a manner which tries to be as environmentally friendly as possible within my circumstances and I would like that to be taken into account with what could be called my final act.

Ideally I would like to donate my body to medical science. I am also a registered organ donor. The process of donating your body to science happens long before you die. You have to submit a form or request to your chosen university of medicine giving your explicit consent while you are alive. It's not possible in most circumstances for somebody else to consent on your behalf after you have passed. If this is something you want then the earlier you arrange it the better. If you are in the UK can read the information on the Human Tissue Authority website. You will have to identify your local facility and contact them individually. I will be submitting a form to Leeds University as that is my local university. Should I move out of their "catchment area" then I will have to submit a form to whatever is the closest medical university there.
However, I also stated that I am an organ donor. Unfortunately this can be incompatible with donating your body to science. Medical researchers generally want whole bodies, so if your organs are donated after your death then the research institute may not be able to accept your body. There are other reasons they may not be able to take your body including some causes of death - each university has guidelines on what they can and can't accept. For this reason it's best not to leave your wishes at simply "donating to science".

image description: picture of a body wrapped in an unbleached linen shroud with yellow primroses resting on a wicker pallet. image from Respect Everybody Shrouds

I need a back up plan should my body not be accepted. For me there are a few considerations.
I specifically do not want to be embalmed and given a traditional British burial: the whole casket, 6ft down in a grave liner thing is not for me. It's too unnatural and too steeped in Christian traditions for me to be comfortable with. Embalming is also pretty nasty stuff. Sure I'll be dead and formaldehyde isn't going to harm me but it is a carcinogenic and there is the potential for harm to embalmers and also to wildlife and plant life should that fluid seep into the earth. Even worse, there have been cases of flooding in cemeteries which have washed that formaldehyde into our general water supply. Let's not do that.
So if I am to be buried I want it to be a natural burial without embalming and preferably in a shroud (I'm not going to lie if there is an eco friendly black option available, I'd love it) or all natural casket rather than the traditional big wooden box with all the fancy bits. This is usually called a Natural Burial or a Green Burial.


The other option I'd be interested in is sadly not licensed in the UK, but if it does become available before my death then it's super cool. It's called Alkaline Hydrolysis but is sometimes called "water cremation" or resomation. It's a process of essentially dissolving the body in an alkaline solution and then filtering the water. It's way more environmentally friendly than traditional cremation, though as it's less understood people are nervous about the thought of water filled with human remains. In reality this is cleaner than the smoke and vapour filled with human remains that gets pumped out of a crematory. My hope is that as it's talked about more people will become more comfortable with it and it will become legal in the UK. To be honest part of me likes this option because it has a slightly sci-fi feel to it.

image description: diagram of how an alkaline hydrolysis machine works showing a body in a cylindrical chamber. diagram from the BBC article "Dissolving the Dead"


And that's it. I have no specific wishes or requirements about funerals, wakes or memorials. I don't think that's up to me. That's something that is important to the living and I am happy to leave it to them to choose something that works for them and their grieving process. My concern is that my body is treated in a way that reflects my values. I would like my loved ones to know and be aware that they can be a part of this process if they want to be - if they want to prepare the body or be there at the burial or water cremation,  if they want a body that can be viewed. I want them to know that they have rights and some measure of control over how they mourn and deal with this event. It doesn't have to be completely taken out of their hands by a formal and clinical funeral home unless that's what they want. And a wake or memorial service can take place at any point and in any place they see fitting. That's ok with me.

I hope this helps you think about your own death in more positive or at least pragmatic terms. Let's start having these conversations and making death a less scary and incomprehensible thing.
There will always be sadness and grief around death and that's ok. But we don't have to make it harder on ourselves if we don't have to.